Delhi HC asks Centre to reconsider ₹50 lakh cap for rare disease treatment

The Delhi High Court has ordered the Centre to reconsider the upper limit of ₹50 lakhs fixed for the treatment of rare disease patients under the National Policy for Rare Disease saying the “cap is inadequate” for some rare diseases falling in the Group 3 category.

The rare diseases have been identified and categorized into three groups: Group 1: Disorders amenable to one-time curative treatment. Group 2: Diseases requiring long term/lifelong treatment with relatively lower cost of treatment. Group 3:- Diseases for which definitive treatment is available but very high cost and lifelong therapy.